Cases

Flynn v. Holder
Challenge to the National Organ Transplant Act

 
 

Doreen Flynn, a single mother of five children from Lewiston, Maine, is a compelling example of the courage and determination parents must exhibit when their children are struck with a deadly blood disease.  Three of Doreen’s daughters have Fanconi anemia, a serious genetic disorder whose sufferers often need a bone marrow transplant in their teens.

   
   bonemarrowvideoplay.jpg
 

Client Video: Saving Lives: Challenging the Ban on Compensating Bone Marrow Donors

 

Video: Press Conference October 28, 2009

Every year, 1,000 Americans die because they cannot find a matching bone marrow donor.  Minorities are hit especially hard.  Common sense suggests that offering modest incentives to attract more bone marrow donors would be worth pursuing, but federal law makes that a felony punishable by up to five years in prison.

That is why on October 28, 2009, adults with deadly blood diseases, the parents of sick children, a California nonprofit and a world-renowned medical doctor who specializes in bone marrow research joined with the Institute for Justice to launch a legal fight against the U.S. Attorney General to put an end to a ban on offering compensation for bone marrow donors.  

The National Organ Transplant Act (NOTA) of 1984 treats compensation for marrow donors as though it were black-market organ sales.  Under NOTA, giving a college student a scholarship or a new homeowner a mortgage payment for donating marrow would land everyone—doctors, nurses, donors and patients—in federal prison for up to five years.

NOTA’s criminal ban violates equal protection because it arbitrarily treats renewable bone marrow like nonrenewable solid organs instead of like other renewable or inexhaustible cells—such as blood—for which compensated donation is legal.  That makes no sense because bone marrow, unlike organs such as kidneys, replenishes itself in just a few weeks after it is donated, leaving the donor whole once again.  The ban also violates substantive due process because it irrationally interferes with the right to participate in safe, accepted, lifesaving, and otherwise legal medical treatment.
    
The only thing the bone marrow provision of NOTA appears to accomplish is unnecessary deaths.  A victory in this case will not only give hope to thousands facing deadly diseases, but also reaffirm bedrock principles about constitutional protection for individual liberty.  This is the first time NOTA has ever been the subject of a constitutional challenge.


 

Essential Background

 

Photos and Videos

Backgrounder: Saving Lives:  Challenging the Federal Ban on Compensating Bone Marrow Donors

 

Latest Release: U.S. Attorney General Seeks 9th Circuit En Banc Review In Bone Marrow Compensation Case (January 18, 2012)

  Client Video: Saving Lives: Challenging the Ban on Compensating Bone Marrow Donors 

Video: Court Argument: Compensate Bone Marrow Donors to Save Lives
 

Photos: IJ Clients Doreen Flynn and Akiim DeShay 

  Podcast: IJ Senior Attorney Jeff Rowes Discusses the Case on Cato's Daily Podcast
Launch Release: Cancer Patients Sue U.S. Attorney General in Bid to Save Lives (October 28, 2009)   Photos: Case Launch
  Audio: Ninth Circuit Argument (February 15, 2011)

 

 

Legal Briefs and Decisions

 

Decision from the 9th Circuit December 1, 2011


IJ Complaint filed October 26, 2009
 

 


 

Case Timeline

Filed Lawsuit: 


October 26, 2009

Court Filed:

 

U.S. District Court, Central District of California

Decision(s):

 

Decision from the 9th Circuit December 1, 2011

 Current Court:   U.S. District Court, Central District of California

  Status:


Decision from the 9th Circuit December 1, 2011
  Next Key Date:  

TBD  

     

Additional Releases

 

Maps, Charts and Facts

Release: Cancer Patients to U.S. Attorney General: Drop Bone Marrow Legal Fight & Save Lives (December 6, 2011)

 

Bone Marrow Statistics

Release: Cancer Patients Win Bone Marrow Legal Fight Against U.S. Attorney General (December 1, 2011)    
   

Op-eds, News Articles and Links

Release: Tuesday Federal Court Argument: Compensating Bone Marrow Donors Could Save Lives But the Government Bans It (February 15, 2011)

 

Article: IJ Makes the Case That Bone Marrow Donors Should be Compensated; Liberty & Law (April 2011)

Release: Hearing in L.A.: Cancer Patients Seek to Remove Federal Criminal Ban On Compensating Bone Marrow Donors (March 10, 2010)
Article: Let's Compensate Bone Marrow Donors; Liberty & Law (April 2011)


Video: Let's Compensate Bone Marrow Donors; KCBS-Los Angeles (February 24, 2011)


Op-ed: Let's compensate bone marrow donors USA Today February 14, 2011


Video: Court Argument: Compensate Bone Marrow Donors to Save Lives; (February 10, 2011)


Video: NBC-TV: Money for Marrow; WRC-NBC (February 12, 2010)


Article: Saving Lives: IJ Challenges the Federal Ban on Compensating Bone Marrow Donors Liberty & Law (December 2009)


Video: IJ Attorney Jeff Rowes Discusses Health Care Challenge on MSNBC; MSNBC (November 20, 2009)


Video: Cancer Patients' Constitutional Challenge to the Allow Compensation for Marrow Donation; (November 20, 2009)
   

Video: Challenging the Ban on Compensating Bone Marrow Donors - Press Conference 10/28/09; (October 28, 2009)

Video: Challenging the Ban on Compensating Bone Marrow Donors - Press Conference 10/28/09 Pt. 2 Q&A; (October 28, 2009)

Article: Markets in Everything: Bone Marrow The Atlantic October 28, 2009

   

Video: Saving Lives: Challenging the Ban on Compensating Bone Marrow Donors; (October 27, 2009)

Article: Fighting the Federal Ban on Compensating Marrow Donors Reason Hit & Run October 28, 2009

    Article: Using Economics to Solve Bone Marrow Transplant Crisis US News & World Report October 28, 2009
    Op-ed: Compensation for marrow donors will save lives The Dallas Morning News October 27, 2009
     

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